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Deciding on hospice care for a loved one is a deeply personal and challenging decision, balancing their wishes and medical realities. Rebecca Edwards, DNP, from Renown Hospice Care, explains the signs indicating when it might be time for hospice and offers guidance on navigating this decision with compassion and clarity. Understanding Hospice Care  Before exploring the decision-making process, it’s crucial to have a clear understanding of what hospice means. Hospice care represents a shift in how we approach living with a terminal condition, emphasizing comfort, dignity, and quality of life above all else. When there is no longer a pathway to a cure, side effects of treatment outweigh the benefits, or someone is simply tired of frequent hospital visits, then it may be time for hospice. Hospice care is mainly done in the home, where most people wish to be. It's a compassionate, team approach to care that focuses on meeting the physical, emotional, and spiritual needs, supporting their families, and honoring individual preferences. 5 Critical Signs to Be Aware Of Decline in Overall Health: When a loved one's health continues to decline despite ongoing medical interventions, this may be a sign that these treatments are no longer effective.  Increasing Pain and Symptoms: When managing symptoms such as pain, nausea, fatigue or shortness of breath becomes increasingly challenging, hospice can offer specialized support and expertise in symptom management.  Frequent Hospitalizations: Repeated hospitalizations or emergency room visits can signify that the disease has progressed to a point where managing symptoms and providing comfort at home or in a hospice setting is a more appropriate approach.  Difficulty with Daily Activities: If your loved one is experiencing difficult with activity of daily living such as dressing, bathing, or mobility, it may be a sign that they require additional support and assistance. Prognosis of Six to 12 Months: Hospice Care is typically recommended for patients with a prognosis of about one year or less if the disease follows its normal course. However, it’s important to remember that every individual is unique and prognosis can vary.

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Becoming a caregiver or playing a more active role in another’s healthcare is a big responsibility. At some point, almost all adults will support an aging parent or a loved one in need. Keeping track of their needs and wellbeing, while also prioritizing your own can become overwhelming. It’s important to know: you are not alone, and help is available. Read on for 11 tips to help you manage your time, your own wellbeing and your loved one’s care. Self-care comes first. When your main priority is the person in your life who needs care, it’s easy for your own needs to take the backseat. Give yourself time each day to focus on your personal wellbeing. It’s hard to give a loved one the care they need if your own needs are not met. Prioritize the Activities of Daily Living (ADL). Make a note of what ADLs your loved one can do alone, what they need help with and what activities require the most help. This will help you work through the day with them, as well as plan out how the day’s activities will go. Do a home safety audit. Do showers, bathtubs and steps have safety grab bars? Look around the house for additional tripping hazards, like rugs or electrical cords. If your loved one struggles with day-to-day navigation of the home, consider scheduling an occupational therapy appointment. This type of therapy helps a person develop or maintain the motions required to accomplish daily tasks. You might also qualify for a referral to in-home healthcare, such as Home Care. Have the hard conversation. The best time to discuss views about end of life care and to learn what choices are available is before a life-limiting illness or crisis occurs. With advance care planning, you can help reduce the doubt and anxiety related to decision making at the end of life. Completing an Advance Directive is a great tool to sort out all these decisions before they’re needed. Attend a free workshop to learn more and complete this important document. Identify when you need respite. Respite care involves receiving a short-term break from caregiving. Organizing in-home care for your loved one will allow you to step away and tend to your needs. By identifying what kind of respite care you are seeking, you can find the right person to provide you with that much-needed break. Don’t wait until you feel overwhelmed, plan ahead. Write down insurance contact information. Have a direct connection to the right insurance professional for support and advice. If your loved one is eligible Medicare, this is a good opportunity to review their current selections and if they would benefit from a Medicare Advantage Plan or Medicare Supplement Insurance. Seeking out expert advice or information on Medicare options is a great way to navigate this. Consider calling a broker, or attend a free educational seminar with Senior Care Plus. Gather legal and financial information. Make a list of all existing legal documents and financial accounts that your loved one has. These might include a will, advance directive, power of attorney, bank accounts or investment accounts. If you have questions about how to manage them, or need assistance in setting up additional framework, reach out to a lawyer, legal service, financial adviser or bank representative. Create an inventory of medical information. Identify where all of your loved one’s medical records are, as well as a list of providers or healthcare practices where they have received care. Consider if you should have your loved one give you Proxy Access in MyChart, which allows you to access all the features in MyChart on their behalf, including viewing upcoming appointments, viewing test results and emailing a doctor on their behalf. Make a list of what others can do. Think about all the little (and big) things that need to happen, and write down tasks that others could take care of you. When someone says “let me know what I can do” you’ll be ready with a pre-written list of items they may be able to assist with. Tasks could include tackling around-the-house repairs, scheduling lawn work, helping to walk the dog, taking a car for an oil change and cleaning. Find programs and events for social enjoyment. If and when possible, seek an activity outside of the home. Look for community centers that have programs for seniors, recreational activities or meals that you can patriciate in together. If leaving the home is not an option, arrange for visits or in-home activities, such as movie nights, card games or time to visit with family. Research long-term options. If you will be considering a nursing home or assisted living, make a list of amenities that you and the person you are caring for would like. Take this list with you when visiting potential locations to make sure you don’t forget to ask about each item.

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Meet Dave Pierson and his Wife Kathy Dave Pierson, 73, and his wife Kathy were just ten days away from a celebratory retirement trip to Africa in May 2021 when severe leg pain and discomfort landed Dave in the Veterans Administration (VA) Hospital. Unbeknownst to the couple, they would not be making the trek to Africa, and it would be several weeks before Dave would be back home with his wife in Carson City, their life drastically different than before.   It all happened so fast. After a prompt referral from the VA Hospital to Renown Regional Medical Center, Dave received treatment for a bacteremia infection and underwent emergency spine surgery due to an epidural abscess. However, once his surgeon Edward Perry, MD completed the emergency procedure at Renown Health, Dave learned there was still a long road ahead. He had extremely limited body function and would need to learn to walk again.  A Husband, Baseball Fan and Veteran  Until this emergency spinal cord surgery, Dave had lived an especially healthy life in his retirement, traveling the world with Kathy, taking photographs along the way and attending ball games for their beloved team, the Reno Aces. Dave, a Vietnam veteran, and Kathy planted their roots in Carson City surrounded by countless friends and family, eagerly awaiting Kathy’s retirement.   The Long Road Ahead  It was those same friends and family who remained by Dave’s side throughout his recovery process.   At the advice of the Renown team, Dave began a personalized physical rehabilitation plan at Renown Rehabilitation Hospital just days after his initial surgery. It was with the help of Charles Krasner, MD, an Infectious Disease Specialist that Dave made a smooth transition to be cared for at the Rehabilitation Hospital. Dave spent six weeks of inpatient treatment relearning fundamental occupational skills and motor functions such as eating and drinking, getting dressed, using a wheelchair and eventually taking his first steps, aided by a walker.   The couple proudly remembers a day at the Rehabilitation Hospital when Dave successfully buttoned up his shirt using a small apparatus designed to aid in the task. "It was a little thing, but it was a monumental thing," Kathy shared.  Dave achieved physical and cognitive victories, both on a small and large scale, over the next six weeks. Kathy visited every day she could, always prepared with a photo of the couple's past travels to encourage Dave.   The Rehabilitation Hospital staff grew close with the Piersons, sharing stories and photos of their dogs, travels and life. The nurses kept Kathy updated about her husband’s condition and prepared her for the journey to come, this included extensive education related to Dave’s future at-home care.   Benjamin Pence, MD, Dave’s lead rehabilitation doctor and the Director of the Institute for Neurosciences, always seemed to know just how to motivate Dave on his most challenging days. As a ranger in Vietnam, the phrase, “drive on ranger” meant a lot to the veteran when it came to determination and perseverance. So, the phrase was used as encouragement by Dr. Pence and the Rehabilitation Hospital team throughout Dave’s journey, becoming a fond memory about hope and determination during recovery.

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Standing at the top of the stairs to the basement Sharon Sturtevant was chatting with her grandson in the kitchen. Suddenly, Sharon stumbled and fell down the stairs. “The last thing I remember was my head hitting the floor before everything went black,” she recalls. Her grandson, Oliver, quickly called 911 and paramedics arrived on the scene, taking her by ambulance to Renown Regional Medical Center where she was diagnosed with a broken collarbone and a neck fracture that would require complex surgery involving fusion of her neck. Fall Recovery Begins After her surgery, Sharon was transported to the Renown Rehabilitation Hospital and her recovery process began. Sharon smiles as she describes the rehab hospital team “They are fabulous here, I learned so much about how my body moves, and the proper way to move it. At home I wouldn’t have known what to do,” she confesses. “They set me up for success to return home and not get injured again.” At Renown Rehabilitation Hospital, different therapists coordinated a custom plan to help Sharon recover from her injuries. Ultimately, the goal of her physical therapy was to help restore and improve her strength, reduce pain and increase her mobility for stamina and balance. Physical Therapy Key to Successful Treatment of Falls “My recovery after the operation was an eye-opener,” Sharon declares. “I had no idea how much went into regaining everyday moment.” During her rehabilitation hospital stay, she had to re-learn how to swallow, go up and down stairs, as well as successfully get in and out of a wheelchair, which involved transferring her body weight safely. Due to hormonal changes after menopause women are 50% more at risk for falls than men, according to research. Sharon now has a greater awareness of how to move her body and is significantly stronger than before entering her physical rehabilitation sessions. Not everyone knows that everyday mobility is impacted by four basic skills: stepping, trunk flexibility, upright posture and weight shifting. “I don’t know how I could have gotten this far without the wonderful therapists here,” she shares. “They are so thorough. Proper alignment was encouraged helping me to walk and stand correctly. They were all so nice and patient with me,” she states. “I actually had less pain because I didn’t hurt myself moving the wrong way.” Falls Are Common Among Aging Adults As we age balance becomes more important. Unfortunately falls are common among older adults with negative quality of life effects, even fatalities. According to the Centers for Disease Control and Prevention (CDC), one in four seniors fall each year in the U.S. A comprehensive physical therapy plan for sudden falls or chronic conditions is a safe, effective alternative treatment to medication such as opioids. Today Sharon is back at home with a new banister installed on the basement stairs. As a music lover she is enjoying her musical grandchildren Oliver and Eliana who play instruments. She looks forward to attending their upcoming school concerts. Sharon remembers the staff at Renown Rehabilitation Hospital fondly, “They were unfailingly patient, supportive, informative and understanding.” Her advice to those unexpectedly finding themselves in the rehabilitation hospital is, “Listen to your therapists carefully and follow their instructions.”

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The Recreation Therapy Alumni Program is a new addition to Renown Rehabilitation Hospital’s current programs. After daily hospital physical therapy ends, it is an opportunity for other adventures. Shaun Stewart, CTRS (Ceritified Therapeutic Recreation Specialist), tells us about the new Renown Alumni Recreation Therapy Program, its partnership with the City of Reno and upcoming events. It’s no secret that being active and social supports a satisfying, happy life. With this in mind, the Renown Alumni Recreation Therapy Program reinforces this idea. Its goal is to help patients experience the energy, teamwork and commitment that sports and recreation provide beyond the hospital walls. “We are happy to partner with the City of Reno’s adaptive and inclusion programming to create an active community of adaptive sports participants. There are many options for outdoor recreation in our area. This program looks to share these opportunities with those with a traumatic spinal cord injury,” says Shaun. April Wolfe, CTRS, with the City of Reno adds, “The program’s main objective is to empower individuals living with spinal cord injury to live and recreate independently in the community. We also want them to enjoy the activities, improving their emotional and physical well-being by taking part in the Renown Alumni Recreation Therapy program.” First Successful Therapy Event On Aug. 27, 2020, the recreation therapy program’s first event was an introduction to adaptive mountain biking. Eight participants enjoyed a morning of adaptive biking thanks to a grant in partnership with the City of Reno. “Getting back to an active leisure lifestyle following injury can increase your quality of life both socially and physically,” explains Shaun. “It was great to be outside with people of all abilities enjoying the beautiful Nevada sunshine.” We encourage patients of all abilities to develop active skills, make lasting friendships and, of course, have a blast. Certainly any activity is possible with adaptive equipment and a motivated attitude. Future Recreation Therapy Events Below are the details for the next event. Event: Introduction to Wheelchair Rugby Learn the rules of the sport and play with local athletes. When: Sunday, Nov. 1, from 2 – 5 p.m. Where: Evelyn Mount Northeast Community Center, 1301 Valley Rd., Reno, NV 89512 Cost: Free RSVP: Shaun.Stewart@renown.org or 775-982-3612 by Tuesday, October 26, 2020 This event has a 10 participant limit, following six feet distancing guidelines. Please bring a mask to wear. In particular, this will be a learning event and no scrimmages will occur Rugby wheelchairs will be provided. Please RSVP, to ensure the reservation of the appropriate equipment. In case you cannot attend this event, please look for upcoming events which will include adaptive archery, skiing and scuba diving. Renown Rehabilitation Hospital | 775-982-3500 Renown Rehabilitation Hospital is the region’s only hospital with certification by the Commission on Accreditation of Rehabilitation Facilities (CARF). It is certified for: Comprehensive Integrated Inpatient Rehabilitation Program Stroke Specialty Program Medical Rehabilitation Case Management Take a Virtual Tour

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University of Nevada, Reno student Khoa Le was paralyzed in 2010 after a longboarding accident. Through physical therapy, a positive attitude and sheer will, Le is walking again. This weekend, Le will walk across the commencement stage to accept his college diploma. “Walking around on my own power is just the greatest feeling,” says Khoa Le, a senior at the University of Nevada, Reno. Just after finishing summer school at the university in July 2010, his whole life changed within seconds after stepping on a longboard skateboard for the first time. He lost control of the board and hit the curb, causing paralysis on the left side of his body. His journey to recovery began at Renown Health Physical Therapy & Rehab. His physical therapist, Dina Barry, says he never complained once in four years. “I started seeing Khoa in April 2011, and we worked for four years together,” says Barry, a lead physical therapist at Renown. “Everything I’ve ever asked him to do, he does. Le is a hard worker, is continuously optimistic and smiling, and I think that is why he’s accomplished what he has.” Le plans to pursue a career as an information systems manager.

Read More About Perseverance and Physical Therapy Help UNR Student Walk Again