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It doesn’t take long to feel at ease when you sit down with Michael and Lorraine Henson. They are the kind of people you immediately know you can count on and want to be friends with. They have had more than their fair share of hard knocks and yet they still maintain an air of warmth and gratitude. That sense of gratitude towards Renown and connection to this community is what led them to make a generous gift in their family trust to Renown Health Foundation. Home Means Nevada Michael and Lorraine met as students at the University of Nevada, Reno (UNR) and they’ve been together ever since. Lorraine moved from Las Vegas to attend UNR and never left. They have deep roots in Reno and deep roots with Renown going back to its Washoe Medical Center (Washoe Med) days. As Michael put it, he is “Reno born and Reno proud.” Michael’s mother was born at Washoe Med in 1937, but it was his personal experiences with Renown that formed his bond with the organization. When Michael was a teenager, his brother was diagnosed with brain cancer. He was treated over the course of the next six years at Renown before passing away at the tragically young age of 24. The impact on his family was life altering. Michael is an Eagle Scout and turned down a spot at the Air Force Academy to stay close and be with his brother. Renown provided support to Michael and his family during this incredibly difficult time as well as other times such as when his father was in hospice and when Lorraine had a health scare. The Ties That Bind A few years after his brother’s death, Michael joined the Renown team and has now been an employee for 31 years! Lorraine too has many connections to Renown. She was an employee for several years, volunteers for Renown Children’s Hospital and is a grateful patient. Making Their Mark Through Renown’s employee giving program Michael and Lorraine have given over $6,500 to support Renown’s mission to make a genuine difference in the health and well-being of the people and communities we serve. “These two are a wonderful example of how small gifts over time really add up and their decision to include Renown Health Foundation in their estate plans can be an inspiration to us all this month in particular, as August is Make a Will Month,” said Greg Walaitis, Chief Development Officer at Renown Health Foundation. “Michael and Lorraine have supported Renown in every way imaginable over the years, including with their time, their talents and their treasure. It is an honor to have them as part of our Renown family.” We are also incredibly grateful to have Michael and Lorraine as members of the Renown Legacy Society, which recognizes donors who have provided for Renown Health Foundation in their estate plans, and we look forward to celebrating them at the Inaugural Renown Legacy Society Celebration taking place on August 30.

Read More About Gratitude and Generosity: The Henson's Journey with Renown Health Foundation

In August 2016, six-year-old Jakob was admitted to Renown Children's Hospital with what seemed like a common ear infection. Jakob's condition quickly progressed, and he started experiencing neurological symptoms such as difficulty speaking and a full-body shutdown. Doctors, neurologists and specialists from Renown worked with doctors from Stanford, where he was ultimately diagnosed with Bickerstaff brainstem encephalitis (BBE). BBE is a rare, autoimmune response that attacks the nerves in the body due to an acute illness such as a cold, flu or, in Jakob's case, an ear infection. Jakob could not breathe or eat and experienced paralysis on the side of his face, throat, stomach, bowels, lungs and legs. In addition, he started to rapidly lose weight as well as body function. Jakob lost half his body weight which resulted in the need for a Gastrostomy tube. This device is placed surgically and gives direct access to the stomach to give the child the nutrition needed. He also needed occupational therapy, and after three and a half months of ICU respiratory therapy, surgeries and treatments, he was released home to regain his strength. Forever Grateful Anica, Jakob's mom, said, "If it were not for the quick response and unconditional support and compassion from the team at Renown, Jakob would not be here today." Jakob's family is forever grateful to the staff, community and expertise at Renown for their unwavering commitment to their son and family during their most trying time in life. "When I met Jakob on the first day of his illness, so much was unknown. My team and I were worried, as his symptoms were very unusual. His rapid deterioration, after being a perfectly healthy child, was clearly terrifying for his parents. Handing over a child's care to a team of strangers is one of the scariest things that can happen to parents,” said Dr. Kris Deeter, Physician in Chief at Renown Children’s Hospital. “However, Anica and Jeremiah were also very clear that they did not want Jakob transferred somewhere else. So, we used all our resources to care for him, arrive at a diagnosis, and start aggressive therapies. They listened to every word we said, educated themselves, and became partners in Jakob's care. We all became part of Team Jakob, and soon, he proved to us just how strong he was." Today, Jakob is 13 years old and thriving in every aspect of his life. He is currently on the honor roll in school and finds joy in his newfound passion for the violin. He loves spending his free time learning about mixing music, making new friends and traveling to different parts of the country. This summer, he will travel to Europe to explore his passion for culture. The family says, "We owe it all to the family and staff at Renown."

Read More About Jakob’s Journey at Renown Children’s Hospital

As our community grows, so does the need for specialized care. Thanks to a generous gift, there’s a healthier future for families in the region as a $7.5 million gift to the Renown Health Foundation is helping keep care close to home. Being in the hospital is often a stressful experience, especially for a child and their caregivers. If you add the need to travel out-of-state for care into the mix, unnecessary anxiety and financial burdens can be placed on a family that is already worried about a sick child. With our quickly growing community and close to 100,000 children under the age of 18 in Washoe County alone, the need for local specialty care is needed. The William N. Pennington Foundation recognized this need and donated $7.5 million to the Renown Health Foundation – the largest gift the health system has received – to keep care close to home and establish the William N. Pennington Fund for Advanced Pediatric Care. Thanks to this gift, Renown Children’s Hospital has hired more than 15 pediatric specialists who provide care for children in our community. Below, we introduce you to three key specialized pediatricians in northern Nevada: Joseph A. Gassen, M.D. “Having pediatric specialists in the community is invaluable,” says Joseph A. Gassen, M.D., pediatric emergency medicine. “It allows families and patients to stay in Reno and not have to travel far distances to get quality care.” Gassen, the only doctor specializing in pediatric emergency medicine in the region, moved to Reno to provide care in the emergency room at Renown Children’s Hospital. “The hospital is dedicated to improving the care of children in northern Nevada, and I wanted to be a part of this amazing vision," Dr. Gassen says. I would not have been able to relocate to Reno without the support from the hospital and the William N. Pennington gift.” Working with children and their families are what Dr. Gassen finds most rewarding. "I get to provide care for a child, which in turn makes the parent feel better,” he says. “Essentially, I get to treat the whole family, even though I only directly care for the kids.”   Colin Nguyen, M.D. Also among the first new specialists is Pediatric Neurologist Colin Nguyen, M.D., who has done extensive work with epilepsy and epilepsy surgery. “In any growing and expanding community, we need the multitude of social, financial, political and well-being services to sustain that growth and progress,” Dr. Nguyen says. “The ability to offer more breadth of medical services to our local population allows families to spend more time together and fulfill work obligations, without the need to travel long distances to obtain that specialized care.” Dr. Nguyen says he enjoys caring for children because they are honest in their emotions and reactions, as well as simple in their intentions. “It is the overall joy and unique sadness that comes in working with children, which drives many of us to continue our work -- I am no exception.” Jacob Zucker, M.D. The third pediatric specialist providing care thanks to the Pennington gift has close ties to northern Nevada. Jacob Zucker, M.D., pediatric hematologist-oncologist, was born and raised in Reno and attended medical school at the University of Nevada, Reno School of Medicine before moving to the Midwest for his residency and fellowship. Dr. Zucker feels fortunate to have been offered the opportunity to return home and give back to the community that has given so much to him. “I can say with absolute resolve that northern Nevada is an exceptional community to practice medicine in. The care offered here at home is top rate and the providers that live and practice here truly understand the purpose of community.” The addition of these three specialists and the future specialists that will be coming to our area will impact thousands of children and their families. “With a growing population, the vision of leadership at Renown, and with the generosity of the William N. Pennington Foundation, northern Nevada is in position for the first time to make local pediatric subspecialty care a reality and to keep our families at home in their community,” Dr. Zucker says.

Read More About Keeping Pediatric Care Close to Home