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Every year, 170 Children's Miracle Network Hospitals (CMNH) across the country name a champion in each of their local communities who will serve as the face for children treated at their community’s children's hospital. Emmalee Sutton, 16, served as Renown Children’s Hospital Champion Child for the past two years, raising awareness for children’s healthcare in northern Nevada and across the nation. A Fighter from the Start Emmalee was diagnosed at age two with autoimmune hepatitis and Addison’s disease, which means her body underproduces critical hormones. It also means that, from an early age, Emmalee spent a lot of her time within the walls of Renown Children’s Hospital. She has endured a long road of illnesses and hospitalizations since, including her gallbladder being removed at age eight, port surgery at 13 and she has received several liver biopsies over the years. However, this disease does not define who Emmalee is; in fact it empowers her to be a fighter for herself and for other kids just like her who are battling disease and illness from a young age. Despite these challenges, Emmalee is a source of hope and inspiration to everyone she meets, never allowing her medical conditions to hold her back. Emmalee knows her story will inspire other young patients to continue fighting and believing in themselves. “Instead of complaining about all the things I can’t do, I celebrate all the things I can do,” Emmalee said. A Voice for Kids and Families Like Hers In her time as our Champion Child, and even well before the official title, Emmalee was a spokesperson for all the children in our community who need care. Since moving into the role of Champion Child in 2021, Emmalee has accomplished an impressive amount over the past two years. To name a few, here are some accomplishments Emmalee has achieved as Renown's Champion Child: Touring donors around Renown Children’s Hospital Promoting Renown’s Panda Cares Center for Hope Helping at Costco each year during their Miracle Balloon Campaign Making blizzards at Dairy Queen on Miracle Treat Day Standing on stage with The Beach Boys to share her experiences in the hospital and talk about the need for outstanding critical care close to home Attending Reno Health Foundation events announcing donations to Renown Children’s Hospital Working alongside NFL legend Steve Young, championing the importance of music therapy for kids staying in the hospital with the announcement of Sophie’s Place Being featured in a television show pilot with the National Automobile Museum In September 2021, Emmalee was awarded the Reno PBS Spotlight Award for Extraordinary Youth. She was highlighted as an individual who makes a positive impact on her community. For her efforts, Emmalee was honored with a $1,000 award, which she generously donated to Renown Children's Hospital. Emmalee’s commitment to Renown inspires us to continue Fighting the Good Fight for our youngest patients, so we can continue to provide the best care for kids like her. Dream it, Wish it, Do it While Emmalee’s tenure as Champion Child ends this month, her passion for helping members of our community is just getting started. Inspired by her drive to work with young girls, Emmalee is taking a counselor-in-training course with the Girl Scouts. She is excited to shape the future of these girls' lives by being a mentor and leader. She has been a Girl Scout for nine years and gives credit to the organization for making a positive impact on her life and contributing to many of the leadership qualities she possesses today. “The Girl Scouts has helped me understand that I am a strong, independent, compassionate young lady, and I use those thoughts whenever I am having all the health issues I have had to endure,” Emmalee said. What else is next for Emmalee? She hopes that being a Girl Scout and training to be a counselor will help her achieve her long-term goal of becoming a pediatric nurse. “I can’t thank the nurses and doctors at Renown enough for the love and care they have given me and continue to do so. They are my inspiration!” she said. But for us, Emmalee is the inspiration. From all of us at Renown, thank you, Emmalee. You motivate us to be our best. How You Can Help Make a Difference Renown Health is focused on being the destination for all your family’s health and healthcare needs. As a not-for-profit health system, Renown relies heavily on community funding. If you are interested in supporting Renown Children’s Hospital, and kids like Emmalee, please consider giving to Renown Health Foundation. Donations are accepted through the following ways: Make a gift at renown.org/give Call Renown Health Foundation at 775-982-5545 Mail a check to Renown Health Foundation, 1155 Mill St., 02, Reno, NV 89502

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A wedding is a big day for the wedding couple, but it’s also special for loved ones. A patient at Renown, Ken, got to take part in his daughter’s special day as her wedding plans changed to accommodate his medical condition. Grab some tissues and read how Renown’s team of compassionate caregivers and chaplains planned a wedding in Fianna’s Healing Garden. Ken was hospitalized at Renown Regional Medical Center where he was battling a lung problem – which was unrelated to COVID-19 – and his condition worsened rapidly on Wednesday, Aug. 12. His family made the decision to transition him to palliative care, which helps patients near the end of their lives remain comfortable, while supporting their dignity and quality of life.  Ken’s medical condition altered wedding plans for his daughter, Chandra, and her fiancé, Tyler, who were planning to tie the knot later in 2020. Chandra wanted her father there, but knew he could not leave the hospital. That’s why Chandra’s sister, Heather, approached Ken’s care team with a request to have a small wedding ceremony at the hospital.  Planning the Wedding A member of Ken’s care team, Amy Heston, registered nurse (RN), began planning how the wedding could be held outdoors in Fianna's Healing Garden in the E. L. Wiegand Pavilion, which was donated by the E. L. Wiegand Foundation.   In 24 hours, Amy planned a wedding ceremony with the help of her colleague, Breyanna Aufiero, RN; the Renown Spiritual Care team; and nursing leaders on the coronary intensive care unit (ICU). Together, they decorated the aisle in the garden with flowers and battery-operated candles. They also made a sign for Ken’s hospital bed, which read, “Father of the Bride,” and crafted a bow tie for him to wear for the special occasion.  With visitor restrictions in place at the hospital due to coronavirus (COVID-19), having the wedding outside in the Healing Garden allowed for more members of Ken’s family to attend including his wife, Charlotte, and his dog, Bella.   Every step in planning the wedding required thoughtful and thorough care coordination so Ken could participate. His breathing was supported by oxygen and special arrangements were made to transport the oxygen tanks he needed to take part in his daughter’s wedding. Amy worked with respiratory technician, Kasey Benfield, and critical care technician, Ruben Duckworth, to ensure Ken’s oxygen needs were met using portable machines.  Celebrating Love and Life Together Ken’s team of caregivers bathed him and shaved his face so he could look and feel his best for the ceremony. They put on his bow tie, covered his bed in decorations and his favorite blue, flannel blanket, and wheeled his bed outside for the ceremony.  Renown associate chaplains Terri Domitrovich and Susan Palwick coordinated music and performed the ceremony for Chandra and Tyler on Thursday, Aug. 13, 2020. The bride and groom shared their first dance in the garden and Ken’s care team provided water and treats to give the family a full wedding experience.   Shortly after the ceremony, Ken passed away. This wedding provided Ken and his family meaningful memories for their big life-changing moments as they celebrated and said goodbye.  “Seeing Ken surrounded by family he never would have gotten to see again while in the hospital, watching him get to share a father-daughter dance with Chandra on her wedding day, and having him tell me that this day meant more to them than we would ever know were some of the most moving moments I’ve witnessed as a nurse,” Amy said. “I am so thankful for the team we have here. I know that this beautiful day wouldn’t have happened without the help of every single person who gave their time, money, creativity and passion to make it a day to remember.”

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