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In August 2016, six-year-old Jakob was admitted to Renown Children's Hospital with what seemed like a common ear infection. Jakob's condition quickly progressed, and he started experiencing neurological symptoms such as difficulty speaking and a full-body shutdown. Doctors, neurologists and specialists from Renown worked with doctors from Stanford, where he was ultimately diagnosed with Bickerstaff brainstem encephalitis (BBE). BBE is a rare, autoimmune response that attacks the nerves in the body due to an acute illness such as a cold, flu or, in Jakob's case, an ear infection. Jakob could not breathe or eat and experienced paralysis on the side of his face, throat, stomach, bowels, lungs and legs. In addition, he started to rapidly lose weight as well as body function. Jakob lost half his body weight which resulted in the need for a Gastrostomy tube. This device is placed surgically and gives direct access to the stomach to give the child the nutrition needed. He also needed occupational therapy, and after three and a half months of ICU respiratory therapy, surgeries and treatments, he was released home to regain his strength. Forever Grateful Anica, Jakob's mom, said, "If it were not for the quick response and unconditional support and compassion from the team at Renown, Jakob would not be here today." Jakob's family is forever grateful to the staff, community and expertise at Renown for their unwavering commitment to their son and family during their most trying time in life. "When I met Jakob on the first day of his illness, so much was unknown. My team and I were worried, as his symptoms were very unusual. His rapid deterioration, after being a perfectly healthy child, was clearly terrifying for his parents. Handing over a child's care to a team of strangers is one of the scariest things that can happen to parents,” said Dr. Kris Deeter, Physician in Chief at Renown Children’s Hospital. “However, Anica and Jeremiah were also very clear that they did not want Jakob transferred somewhere else. So, we used all our resources to care for him, arrive at a diagnosis, and start aggressive therapies. They listened to every word we said, educated themselves, and became partners in Jakob's care. We all became part of Team Jakob, and soon, he proved to us just how strong he was." Today, Jakob is 13 years old and thriving in every aspect of his life. He is currently on the honor roll in school and finds joy in his newfound passion for the violin. He loves spending his free time learning about mixing music, making new friends and traveling to different parts of the country. This summer, he will travel to Europe to explore his passion for culture. The family says, "We owe it all to the family and staff at Renown."

Read More About Jakob’s Journey at Renown Children’s Hospital

As an avid soccer player, Sarah saw her fair share of doctors growing up. However, it wasn’t until she was diagnosed with celiac disease, an autoimmune disease affecting how the body ingests gluten, that she became passionate about healthcare. “I couldn’t figure out what was going on,” Sarah said. “I was getting sick, and my symptoms were getting worse.” Thankfully, after seeing a handful of doctors, she was on the path to recovery.  “I remember being so relieved, and still am! Now I can focus on getting better,” said Sarah. The most important change people make after being diagnosed with celiac disease is the shift to a gluten-free diet. For many, Sarah included, living gluten-free is a lifestyle change. Thankfully, Sarah sees significant improvements in her health after adjusting her diet. “No one should just accept their symptoms as part of life,” said Sarah. Her increased awareness of health and nutrition motivated Sarah to study biology at the University of Nevada, Reno (UNR). “I want to be a pediatrician so I can help patients, especially kids, figure out treatment plans.” said Sarah who credits her experience living with celiac disease as her inspiration. Dancing for Kids’ Health Currently a senior at UNR, Sarah is a member of Phi Delta Epsilon, a co-ed international medical fraternity. Together with her classmates, she is bringing new energy and ideas to philanthropy. Sarah and the members of Phi Delta Epsilon are doing things differently and in many ways redefining what it means to give. This year, they are on a mission to raise funds for kids’ health at Renown Children’s Hospital. And they are doing this by dancing. The UNR Dance Marathon is part of the Miracle Network Dance Marathon, a student-led, year-round philanthropic movement that unites students across the United States and Canada. Collectively, they raise critical funds for Children's Miracle Network Hospitals. And Renown Children’s Hospital is our northern Nevada CMN partner hospital. Since 1991, over 400 college campuses and thousands of students have raised $300 million for kids. Sarah is the executive director of UNR’s chapter. “So far this year we’ve already raised $10,000 for Renown," said Sarah. Most of the fundraising happens on the day of the dance marathon. But throughout the school year, students hold mini fundraisers on campus and in the community. One hundred percent of the funds raised stay local, impacting Renown’s youngest patients. For every dollar donated, 18% helps provide charitable care, 15% goes to life-saving equipment, 12% supports medical research and 55% provides education, patient services and advancement services. “It's inspiring that we banded together to help kids in our community,” said Sarah. Last year they raised over $18,000. They are hoping to exceed that number at this year’s dance marathon in April.

Read More About Why I Give: Sarah’s Story

Renown Health Foundation and local community members raised over $1,000,000 at a charity concert with The Beach Boys and special guest NFL legend Steve Young, on Sunday, June 5, at Montreux Golf and Country Club. The event benefits the construction of Sophie’s Place, a new dedicated music therapy room coming to Renown Children’s Hospital. Over 500 donors attended the inaugural event hosted by radio personality Wink Martindale. The Beach Boys front man Mike Love, a Nevada resident, generously auctioned off two once-in-a-lifetime, private concerts bringing in $300,000. Steve Young auctioned off a Monday Night Football package and ZLINE Kitchen and Bath auctioned off a kitchen remodel. The proceeds raised will be transformative for Sophie’s Place and will impact children in our community for years to come. “I’m thankful to Renown and other children’s hospitals that are dedicating space, precious space, for Sophie’s Place,” says Steve Young, founder of Forever Young Foundation and co-founder of Sophie’s Place. View photos from the event here.   What is Sophie’s Place? Sophie’s Place is a dedicated music therapy room in children’s hospitals across the country. Founded by the Forever Young Foundation and former San Francisco 49'ers quarterback, Steve Young, they provide a comprehensive music and healing arts program. Established in loving memory of musician Sophie Barton, the first Sophie’s Place opened in 2013 at Primary Children’s Hospital in Salt Lake City, Utah. Additional locations include Sutter Children’s Center in Sacramento, CA., Cardon Children’s Medical Center in Mesa, AZ., Lucille Packard Children’s Hospital in Palo Alto, CA., and Brenner Children's Hospital in Winston-Salem, NC. Renown Children’s Hospital will be the next location to break ground and will provide our youngest patients with a state-of-the-art music room. It will be the first of its kind in our community. “Sophie’s Place is a wonderful addition to what a hospital has to offer,” says Dr. Max Coppes, Pediatrics Chair, UNRSOM. Where will Sophie’s Place be Located? Sophie’s Place at Renown Children’s Hospital will be located on the ground floor of the Sierra Tower, next to The John & Sue Dermody Children’s Healing Garden. The family-centered space is designed for children to enjoy the healing aspects of music and encourage creativity and expression during their stay. “We really wanted kids to feel like they’re not in the hospital. It’s a place where they can escape,” says Barb Young, Founder of Forever Young Foundation and Co-founder of Sophie’s Place. The room includes a performance space, recording studio, musical instruments, editing software and an art and play area. “When you walk into a Sophie’s Place, you really feel like you’ve left the hospital and walked into a cool coffee shop,” says Sterling Tanner, President, Executive Director, Forever Young Foundation. How You Can Help Make a Difference Renown Health is focused on being the destination for all your family’s health and healthcare needs. As a not-for-profit health system, Renown relies heavily on community funding. If you are interested in supporting Sophie’s Place at Renown Children’s Hospital, please consider giving to Renown Health Foundation. Make a gift at renown.org/give Call Renown Health Foundation at 775-982-5545 Mail a check to Renown Health Foundation, 1155 Mill St., 02, Reno, NV 89502

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