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Respiratory syncytial virus, also known as RSV, is a common respiratory virus that impacts the lungs and breathing pathways. The virus can be dangerous for infants and young children and is also concerning for older adults. While most older kids and adults only experience cold-like systems and recover in a week or two, an estimated 58,000-80,000 children younger than 5 years old are hospitalized due to RSV each year, and in 2022 healthcare organizations across the country are experiencing higher infection rates than in years past.  "We are experiencing a strong RSV season and do not expect it to go away anytime soon," said Dr. Kris Wilson, Division Chief of Renown Children's Primary Care. "Infants who are infected with RSV almost always show symptoms of runny noses and cough. Call your healthcare provider immediately if your child is having difficulty breathing, is not drinking enough fluids, or is experiencing any worsening of these symptoms.” Symptoms of RSV: Runny nose  Decrease in appetite/inability to drink Dry diapers, an indication of dehydration  Cough, which may progress to wheezing or difficulty breathing Irritability (most common in very young infants) Decreased activity (most common in very young infants) Decreased appetite (most common in very young infants) Apnea, pauses in breathing for more than 10 seconds (most common in very young infants) What to do if you think your child has RSV: Call your pediatrician! If you suspect your child might have RSV, consulting their healthcare provider is the best first line of defense. From here they will help you build an appropriate treatment plan for child. Keep in mind that many pediatrician offices offer 24/7 call lines.  If your child is experiencing retracted breathing (when the area between the ribs and in the neck sinks in when a person attempts to inhale), dehydration (not drinking and decrease in wet diapers) or apnea (pauses in breathing for more than 10 seconds) please call 911 or go to the closest emergency room.

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In August 2016, six-year-old Jakob was admitted to Renown Children's Hospital with what seemed like a common ear infection. Jakob's condition quickly progressed, and he started experiencing neurological symptoms such as difficulty speaking and a full-body shutdown. Doctors, neurologists and specialists from Renown worked with doctors from Stanford, where he was ultimately diagnosed with Bickerstaff brainstem encephalitis (BBE). BBE is a rare, autoimmune response that attacks the nerves in the body due to an acute illness such as a cold, flu or, in Jakob's case, an ear infection. Jakob could not breathe or eat and experienced paralysis on the side of his face, throat, stomach, bowels, lungs and legs. In addition, he started to rapidly lose weight as well as body function. Jakob lost half his body weight which resulted in the need for a Gastrostomy tube. This device is placed surgically and gives direct access to the stomach to give the child the nutrition needed. He also needed occupational therapy, and after three and a half months of ICU respiratory therapy, surgeries and treatments, he was released home to regain his strength. Forever Grateful Anica, Jakob's mom, said, "If it were not for the quick response and unconditional support and compassion from the team at Renown, Jakob would not be here today." Jakob's family is forever grateful to the staff, community and expertise at Renown for their unwavering commitment to their son and family during their most trying time in life. "When I met Jakob on the first day of his illness, so much was unknown. My team and I were worried, as his symptoms were very unusual. His rapid deterioration, after being a perfectly healthy child, was clearly terrifying for his parents. Handing over a child's care to a team of strangers is one of the scariest things that can happen to parents,” said Dr. Kris Deeter, Physician in Chief at Renown Children’s Hospital. “However, Anica and Jeremiah were also very clear that they did not want Jakob transferred somewhere else. So, we used all our resources to care for him, arrive at a diagnosis, and start aggressive therapies. They listened to every word we said, educated themselves, and became partners in Jakob's care. We all became part of Team Jakob, and soon, he proved to us just how strong he was." Today, Jakob is 13 years old and thriving in every aspect of his life. He is currently on the honor roll in school and finds joy in his newfound passion for the violin. He loves spending his free time learning about mixing music, making new friends and traveling to different parts of the country. This summer, he will travel to Europe to explore his passion for culture. The family says, "We owe it all to the family and staff at Renown."

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Austin was five years old when he was diagnosed with leukemia. A fever and pale looking skin prompted his mom, Brenda, to bring him into his primary care physician in Carson City. After doing some blood work, the fight to beat Austin's cancer began. The initial shock of learning your child has cancer is traumatic and can feel like a whirlwind. Then the questions begin – will my child survive, what happens next, how will we tell his siblings, will we have to travel out of state for quality care? The list of questions feel endless. While grappling with the news, Brenda brought Austin to Renown Children’s Hospital for an additional check-up. This weeklong hospitalization started with a series of tests to confirm Austin’s diagnosis and ultimately it led to treatment for the leukemia. Dr. Jacob Zucker, a pediatric oncologist at Renown Children's Hospital, was with Austin every step of the way, even meeting him in the parking garage on his first day of treatment. Brenda is eternally grateful that Dr. Zucker was on staff at Renown Children's Hospital, which allowed them to keep Austin's care in Reno. The alternative was to travel out of state for care. "Dr. Zucker was the best thing to ever happen to our family. I consider him a part of our family now," said Brenda. "His kindness and knowledge gave us faith in him." Treatment for Childhood Leukemia Austin’s treatment was broken into a number of stages with the first eight months of therapy being the hardest. He would receive almost weekly therapy at Renown Children’s Infusion Center as well as frequent spinal taps with chemotherapy. After eight months, and for the next three years, Austin would receive a maintenance phase therapy. This meant oral chemotherapy every day, IV chemotherapy once a month, spinal chemotherapy every three months and steroids for the first five days of every month. After more than four years of fighting cancer, Austin, now 10, is free of any disease. Currently, he has blood work every two months to ensure he is on the right track. Seeking Advice from Children’s Oncology Groups Throughout Austin's treatment, Brenda regularly sought advice from Children's Oncology Group (COG) members. COG is the world’s largest organization devoted exclusively to childhood cancer. Renown Children's was not a member of COG at the time of Austin's treatment -- with the closest facilities located in the Bay Area and Salt Lake City – but it is /now. “When faced with pediatric cancer, the last thing parents should worry about is traveling great lengths to receive the best in cancer care," said Larry Duncan, Vice President of Pediatrics and Surgery and Administrator at Renown Children's Hospital. "We are proud to now offer the most advanced childhood cancer treatment options here at Renown, close to home and convenient for area patients and their families.” This membership allows Renown to enroll our youngest patients – just like Austin – in the latest clinical trials, including groundbreaking treatments, studies to understand these diseases better and in addition, this program will focus on supportive care and survivorship. "The COG allows Renown providers to access treatment plans that were not available to non-COG hospitals when Austin was receiving treatment," said Brenda. "It comforts me to know that not only can children receive cancer treatment right at home, but their parents can now elect for them to participate in trials and plans that are at the forefront of cancer treatment today." How You Can Help Make a Difference Renown Health is focused on being the destination for all your family’s health and healthcare needs. As a not-for-profit health system, Renown relies heavily on community funding. If you are interested in supporting Renown Health, and kids like Austin, please consider giving to Renown Health Foundation. Donations are accepted through the following ways: Make a gift at www.renown.org/give Call Renown Health Foundation at 775-982-5545 Mail a check to Renown Health Foundation, 1155 Mill St., 02, Reno, NV 89502

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