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Every year, 170 Children's Miracle Network Hospitals (CMNH) across the country name a champion in each of their local communities who will serve as the face for children treated at their community’s children's hospital. Emmalee Sutton, 16, served as Renown Children’s Hospital Champion Child for the past two years, raising awareness for children’s healthcare in northern Nevada and across the nation. A Fighter from the Start Emmalee was diagnosed at age two with autoimmune hepatitis and Addison’s disease, which means her body underproduces critical hormones. It also means that, from an early age, Emmalee spent a lot of her time within the walls of Renown Children’s Hospital. She has endured a long road of illnesses and hospitalizations since, including her gallbladder being removed at age eight, port surgery at 13 and she has received several liver biopsies over the years. However, this disease does not define who Emmalee is; in fact it empowers her to be a fighter for herself and for other kids just like her who are battling disease and illness from a young age. Despite these challenges, Emmalee is a source of hope and inspiration to everyone she meets, never allowing her medical conditions to hold her back. Emmalee knows her story will inspire other young patients to continue fighting and believing in themselves. “Instead of complaining about all the things I can’t do, I celebrate all the things I can do,” Emmalee said. A Voice for Kids and Families Like Hers In her time as our Champion Child, and even well before the official title, Emmalee was a spokesperson for all the children in our community who need care. Since moving into the role of Champion Child in 2021, Emmalee has accomplished an impressive amount over the past two years. To name a few, here are some accomplishments Emmalee has achieved as Renown's Champion Child: Touring donors around Renown Children’s Hospital Promoting Renown’s Panda Cares Center for Hope Helping at Costco each year during their Miracle Balloon Campaign Making blizzards at Dairy Queen on Miracle Treat Day Standing on stage with The Beach Boys to share her experiences in the hospital and talk about the need for outstanding critical care close to home Attending Reno Health Foundation events announcing donations to Renown Children’s Hospital Working alongside NFL legend Steve Young, championing the importance of music therapy for kids staying in the hospital with the announcement of Sophie’s Place Being featured in a television show pilot with the National Automobile Museum In September 2021, Emmalee was awarded the Reno PBS Spotlight Award for Extraordinary Youth. She was highlighted as an individual who makes a positive impact on her community. For her efforts, Emmalee was honored with a $1,000 award, which she generously donated to Renown Children's Hospital. Emmalee’s commitment to Renown inspires us to continue Fighting the Good Fight for our youngest patients, so we can continue to provide the best care for kids like her. Dream it, Wish it, Do it While Emmalee’s tenure as Champion Child ends this month, her passion for helping members of our community is just getting started. Inspired by her drive to work with young girls, Emmalee is taking a counselor-in-training course with the Girl Scouts. She is excited to shape the future of these girls' lives by being a mentor and leader. She has been a Girl Scout for nine years and gives credit to the organization for making a positive impact on her life and contributing to many of the leadership qualities she possesses today. “The Girl Scouts has helped me understand that I am a strong, independent, compassionate young lady, and I use those thoughts whenever I am having all the health issues I have had to endure,” Emmalee said. What else is next for Emmalee? She hopes that being a Girl Scout and training to be a counselor will help her achieve her long-term goal of becoming a pediatric nurse. “I can’t thank the nurses and doctors at Renown enough for the love and care they have given me and continue to do so. They are my inspiration!” she said. But for us, Emmalee is the inspiration. From all of us at Renown, thank you, Emmalee. You motivate us to be our best. How You Can Help Make a Difference Renown Health is focused on being the destination for all your family’s health and healthcare needs. As a not-for-profit health system, Renown relies heavily on community funding. If you are interested in supporting Renown Children’s Hospital, and kids like Emmalee, please consider giving to Renown Health Foundation. Donations are accepted through the following ways: Make a gift at renown.org/give Call Renown Health Foundation at 775-982-5545 Mail a check to Renown Health Foundation, 1155 Mill St., 02, Reno, NV 89502

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Posture is important, but for those children diagnosed with scoliosis (spinal curvature) it can be a difficult issue. The Washoe County School District Student Health Services Department screens 7th grade students for scoliosis as growth spurts often reveal the condition and, if diagnosed early, scoliosis can stop progressing. We asked Michael Elliott, MD, head of the Department of Pediatric Orthopedics and Scoliosis to answer some frequently asked questions about scoliosis. What is scoliosis? There are many types of scoliosis: early onset (occurs before age 10), congenital scoliosis is when the bones of the spine do not form correctly, neuromuscular scoliosis which is due to children’s neurologic and muscle disease, and the most common is Adolescent Idiopathic Scoliosis. The term “idiopathic “ means the exact cause is unknown, although we do know it runs in families. This type of scoliosis occurs in 2-3 percent of adolescents and is mainly seen during their growth spurt. This is why middle school screenings are recommended. Both genders get scoliosis but girls are 8 times more likely to have their curves progress and become larger. What are the signs that my child may have scoliosis? A few signs for parents to watch for are: One shoulder might be higher than the other. One leg may seem longer. A hip may be higher or look more prominent. The waist may not look the same from side to side (asymmetry). The trunk or rib cage may be more prominent on one side or shifted. When they bend forward they may have a bump on their back. How is scoliosis diagnosed? It can be noticed by a pediatrician at a physical, school screening nurse, PE teacher or parents. Once the curve is suspected the child is usually referred to a pediatric orthopedic surgeon scoliosis expertise. At the initial visit the doctor will perform a thorough physical including a complete neurologic exam to assess the amount of curvature. Once the exam is completed the physician will determine if a spinal x-ray is needed. The curve on the x-ray is measured utilizing the cobb angle (a measurement in degrees) which helps guide the treatment. What are common treatments for scoliosis? The treatment depends on the size of the spinal curve and the amount of growth the child has remaining. An x-ray of the child’s hand is used to determine the amount of growth remaining. This allows the determination of the child’s bone age, and based on the hands growth plates it can determined if the child is in their rapid phase of growth. Treatments include: Observation - For curves less than 20-25 degrees. This entails visits every 6-9 months with a repeat scoliosis x-ray. Since scoliosis curves increase only 1-2 degrees per month, and variations in measurements can be 3-5 degrees, an x-ray is not recommended before 6 months. If the curve remains less than 25 degrees the child is followed until their growth is completed (usually age 16-18). Progressing Curve - If growth is finished and the curve is less than 40 degrees, the risk of more curvature into adulthood is small. If growth is completed and the curve is over 45 degrees, the child is followed for several years as these curves can progress into adulthood. If the patient is still growing and the curve has progressed greater than 25 degrees but still in the non-operative range (less than 45-50 degrees) bracing is used to stop the progression of the curve. Bracing - Indicated for curves over 25 degrees but less than 45 degrees. If a brace is required you will be referred to an orthotist (bracing specialist). The orthotist assesses your child, reviews the x-ray and then fits the brace. (Having a brace made usually takes 2-3 weeks.) Once the brace is fit, your child will visit the scoliosis specialist for an x-ray in the brace to ensure it fits correctly. The primary goal of bracing is to halt progression of the curve and prevent the need for surgery. The brace must be worn for about 16 hours per day to be effective. In a recent bracing study 72% of the patients who wore their braces as prescribed prevented the need for surgery compared to the group who did not wear their brace. Surgery: When a curve reaches 45-50 degrees, and a child is still growing, surgery is usually recommended because the curve is likely to continue progress. If a curve is over 50 degrees and the child is done growing surgery also may be recommended. This is because when curves are over 50 degrees they tend to increase 1-2 degrees per year for the rest of your life. As curves get larger the amount of lung function tends to decrease which could cause breathing problems later in life. The goals of surgery are to stop the progression of the curve and safely correct any misalignment. This is accomplished by attaching implants (rods, screws, hooks and bands) to the spine. Bone graft is then placed around the implants to encourage the spine to fuse (grow together). This then forms a solid column of bone with metal rods in place, preventing the curve from changing. Most patients are back to their regular sports and activities six months post surgery.

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