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Thank You, Emmalee Sutton!
Every year, 170 Children's Miracle Network Hospitals (CMNH) across the country name a champion in each of their local communities who will serve as the face for children treated at their community’s children's hospital. Emmalee Sutton, 16, served as Renown Children’s Hospital Champion Child for the past two years, raising awareness for children’s healthcare in northern Nevada and across the nation. A Fighter from the Start Emmalee was diagnosed at age two with autoimmune hepatitis and Addison’s disease, which means her body underproduces critical hormones. It also means that, from an early age, Emmalee spent a lot of her time within the walls of Renown Children’s Hospital. She has endured a long road of illnesses and hospitalizations since, including her gallbladder being removed at age eight, port surgery at 13 and she has received several liver biopsies over the years. However, this disease does not define who Emmalee is; in fact it empowers her to be a fighter for herself and for other kids just like her who are battling disease and illness from a young age. Despite these challenges, Emmalee is a source of hope and inspiration to everyone she meets, never allowing her medical conditions to hold her back. Emmalee knows her story will inspire other young patients to continue fighting and believing in themselves. “Instead of complaining about all the things I can’t do, I celebrate all the things I can do,” Emmalee said. A Voice for Kids and Families Like Hers In her time as our Champion Child, and even well before the official title, Emmalee was a spokesperson for all the children in our community who need care. Since moving into the role of Champion Child in 2021, Emmalee has accomplished an impressive amount over the past two years. To name a few, here are some accomplishments Emmalee has achieved as Renown's Champion Child: Touring donors around Renown Children’s Hospital Promoting Renown’s Panda Cares Center for Hope Helping at Costco each year during their Miracle Balloon Campaign Making blizzards at Dairy Queen on Miracle Treat Day Standing on stage with The Beach Boys to share her experiences in the hospital and talk about the need for outstanding critical care close to home Attending Reno Health Foundation events announcing donations to Renown Children’s Hospital Working alongside NFL legend Steve Young, championing the importance of music therapy for kids staying in the hospital with the announcement of Sophie’s Place Being featured in a television show pilot with the National Automobile Museum In September 2021, Emmalee was awarded the Reno PBS Spotlight Award for Extraordinary Youth. She was highlighted as an individual who makes a positive impact on her community. For her efforts, Emmalee was honored with a $1,000 award, which she generously donated to Renown Children's Hospital. Emmalee’s commitment to Renown inspires us to continue Fighting the Good Fight for our youngest patients, so we can continue to provide the best care for kids like her. Dream it, Wish it, Do it While Emmalee’s tenure as Champion Child ends this month, her passion for helping members of our community is just getting started. Inspired by her drive to work with young girls, Emmalee is taking a counselor-in-training course with the Girl Scouts. She is excited to shape the future of these girls' lives by being a mentor and leader. She has been a Girl Scout for nine years and gives credit to the organization for making a positive impact on her life and contributing to many of the leadership qualities she possesses today. “The Girl Scouts has helped me understand that I am a strong, independent, compassionate young lady, and I use those thoughts whenever I am having all the health issues I have had to endure,” Emmalee said. What else is next for Emmalee? She hopes that being a Girl Scout and training to be a counselor will help her achieve her long-term goal of becoming a pediatric nurse. “I can’t thank the nurses and doctors at Renown enough for the love and care they have given me and continue to do so. They are my inspiration!” she said. But for us, Emmalee is the inspiration. From all of us at Renown, thank you, Emmalee. You motivate us to be our best. How You Can Help Make a Difference Renown Health is focused on being the destination for all your family’s health and healthcare needs. As a not-for-profit health system, Renown relies heavily on community funding. If you are interested in supporting Renown Children’s Hospital, and kids like Emmalee, please consider giving to Renown Health Foundation. Donations are accepted through the following ways: Make a gift at renown.org/give Call Renown Health Foundation at 775-982-5545 Mail a check to Renown Health Foundation, 1155 Mill St., 02, Reno, NV 89502
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A Fighting Chance at 24 Weeks Sloans Story
Most babies weigh just one pound and are roughly the size of an eggplant when they reach 24 weeks of development inside the womb. It is a crucial stage when internal organs begin functioning, and the babies' respiratory and central nervous systems are still developing. So, in November 2021 when Kallie Johnson experienced a premature rupture of amniotic fluid around this point in her pregnancy, her care team in Winnemucca decided to transport her via Care Flight to Renown Regional Medical Center. The team at Renown Children’s Hospital immediately began discussing the risks of delivering at 24 weeks with the Johnson family. Moving Forward with Hope Knowing the stakes, Kallie remembers never feeling rushed to decide about delivering her baby preterm. “I felt educated and supported by my care team at Renown throughout our entire stay, starting with the education they provided about what it meant to deliver my baby early,” Kallie said. “The team really helped me make the best decision for myself and my family.” Together, Renown employees and the Johnson family moved forward with a healthy set of nerves and a powerful feeling of hope. Weighing in at one pound 11 ounces, Sloan entered the world on Nov. 19, 2021, via emergency Cesarean section. Her birth was classified as a micro preemie because she was born before week 26 of pregnancy and so small that she fit inside the palm of her father Sterling’s hand. A full-term pregnancy is classified as reaching 39 weeks. A Fighting Chance Called a fighter by many Renown Children’s Hospital care team members, Sloan spent over five months in the neonatal intensive care unit (NICU). She was placed on a ventilator, fed through a feeding tube and monitored 24/7, overcoming daily challenges with the Renown team and her family. As a result of being born prematurely, Sloan developed a grade one brain bleed and a congenital heart defect called patent ductus arteriosus, a persistent opening between two major blood vessels, causing too much blood to flow to the lungs and heart. To meet the oxygen needs of her tiny lungs, Sloan was intubated and developed a severe oral aversion and high-arched palate as a result. The effects would lead to difficult developmental and physical challenges that she still conquers today. Yet, with the help of her care team – including physical, occupational and speech therapists, dieticians and doctors – Sloan continues to make progress every day.